And the other shoe.... drops.

You know, when I started this blog, it was with the intention of showing that my life is so much more than just sickness and pain. And it is, it really is. But these last few days since I've started this blog haven't been! It seems that I've spent my entire last three days making appointments, dealing with pain and injuries, and dragging my painful butt around to doctors appointments. So if you are reading this, it will get better, it always does. But this week, well it's been hell.



I had a conversation with Aaron last night that still has me reeling. It's really too much for my brain to handle all at once, there are so many thoughts going through my head it's making me exhausted.



As I mentioned yesterday, Aaron had his orthopedic appointment yesterday for his shoulder. So last night after the kids went to bed he started talking to me about the little details. He told the doctor that he just couldn't deal with this shoulder, that he didn't have time to be crippled up by it because he had a EDS challenged wife and children at home to take care of. She knew all about Ehlers Danlos (wow! How far we've come, huh!) she continued checking his joints and the conversation went on. Then she came back and said to him, "So when were you diagnosed with Ehlers Danlos?" [Aaron] "No, *I* don't have Ehlers Danlos, my wife does". [Doctor] "Oh! Really? Because your shoulder blades shouldn't wing out- *demonstrates* [Doctor] "And your thumbs shouldn't pull up under your shoulder blades like this"- *demonstrates* "And your thumbs shouldn't pull down to your forearms like this" *demonstrates*

She also demonstrated to him what the normal range of motion for fingers was, and how his go way farther back. She told him all these are Ehlers Danlos traits. Then she said, "Well, back to your shoulder....."

As he's telling me this, he is demonstating to me. I'm dumbstruck. He is "circus tricking" like an EDSer for sure.



Oh. My. God. How did this happen? I remember back to dating, and tell him that we've discussed this possibility in the past. I have told him before that he is the only guy I've dated whose skin felt "right" to me. It feels velvety like mine not "sticky" like normal skin. It was one of the things that attracted me to him. Did I unintentionally seek out another EDSer? What are the odds I married someone else with my genetic disorder? What does that mean for my children? Does that mean if we both do have it that their 50% chance of inheriting the gene becomes 100%?



Then we got into a huge argument. I said you need to see the doctor that diagnosed us. He said why? I don't need to be diagnosed. I disagree. I want to KNOW. He doesn't need or want a diagnosis. I think it's important- what does this mean for the children? If he does have EDS then he should have his heart monitored too right? What does this mean for his shoulder? We got into it and I was so frustrated with him. I need to KNOW. He worries about how it would effect his insurance, etc.



I'm still reeling this morning. Sleep didn't come easily, and I feel like I've woken up to a nightmare. How is this possible? I did tell him that I watched a video recently that showed a wife and husband both with EDS. I wonder how they ended up together? Here is that video.