I haven't blogged since Friday morning. The weekend went by like a whirlwind as they often do. We were all too exhausted from the emotional chaos of the week before. Friday evening we had date night, we went out and picked out Aaron's glasses, they look great. Then we went out with our best friends to Smokey Bones. We had a great time. It just didn't seem like I was totally "there". I wanted to be though. I was worried about Hunter but he did fine with Papa while we were out.
Saturday was a beautiful day, a constant fight with Giovanna to keep her in the house, in the yard, on the street. She is quite the runner. I worked a bit on the teapot set. I'm getting really close to finishing it now. I'm worried I won't have time to do her Easter dress. I do have a backup just in case, if it still fits her. The day turned strange when our neighbors on both side of us got in a full on fight in the front yards. The kids were outside as well. The neighbor children got in an argument over a snake, and one of our neighbor boys was beaten with a fishing rod, punched and kicked. It really sent Hunter over the moon, into a total meltdown. The police were called and the havoc went on for hours, in fact it went into Sunday. I hope and pray this is not a sign of things to come with the neighbors.
Sunday went much like Saturday, lolling around the house trying to regenerate for the week ahead. Hunter was still having small "seizures" but nothing over the top notable. Enough to continue to worry us though. I pinched a nerve on the right side of my neck, loosing mobility. I had been trying to quit taking my muscle relaxer, to see if it still was giving any benefit. Apparently it does. :)
Monday we decided to try sending Hunter back to school to see how he would do. That is what the doctors had suggested and he was more than happy to go back. He got up and we got him on the bus. Shortly after I received 3 phone calls. The first was from the bus driver, he had a seizure on the bus, missed his dropoff, and Tristan had been trying to arouse him, with no success. When it came time for him to get off the bus to kindergarten he refused to leave his brother (thank God, since they didn't even know he was still on the bus!) and Tristan was hysterical. They did arouse him and the bus driver brought him back to me. Poor Tristan. The other two were from the Jr. High telling me what happened and from the Elementary. So, I packed him and Giovanna up and headed to the ER. They did get us back promptly and he finally got that EEG. Once it was done they sent us back to ER and discharged us. We didn't get a diagnosis, treatment plan or even the EEG results. Luckily Papa had picked Giovanna up and taken her to McDonalds. She had a fun time. We headed home and I started calling doctors. No one had any additional answers, but his pediatrician did call for the results of the EEG stat. He was VERY concerned and worried and amazed that they discharged him. He wanted to set up an extended appointment to go over all that was going on. He of course was already gone and his nurse was going to try to fit us in. She said she would call back on Wednesday. Seizures continue. Hunter is exhausted. Aaron is extremely depressed as well he keeps having reoccuring dreams every night that he dies during surgery. It is really wearing on him along with his worries about Hunter.
Yesterday we picked up Tristan from school in the morning to take him to the dentist. He got a filling in one of his back teeth. He did very good and this dentist seems very caring. Which is good because her assistants are real bitchy to me and I don't enjoy that part. We rushed home since Papa was coming to read to the kindergarten yesterday. The kids had fun wearing their St. Patricks Day stuff. They looked very festive! I took a picture in the morning before taking Tristan and Dakota to school. The afternoon went well, Papa came, I got ready to go out with Aaron after he got home from work, which was fun. I think the primping for date night is almost as fun as going out! I did get quite a bit of housework done, which needed doing. Everything has been put on the back burner dealing with all the health issues. I called the pedi and finally got a call back in the afternoon. He wants the psych doc to do more for Hunter. He wants to see med changes done and fast. He is referring to a neurologist as well and that appointment is in the first week of April. He is very concerned and worried. I did get ahold of the psych again and they are fitting Hunter in today (Wednesday). I hope they do SOMETHING. The kids were all in fighting moods like I rarely see around here. I think it was the heat. Aaron and I went out to O'Charleys which was delicious. We then went to LensCrafters to get his glasses adjusted again, and then home. We did have a good time. I still don't feel like I really am myself with all this going on. I'm just totally emotionally spent and I can't ever feel totally relaxed or happy. I'm sure that it did help to get out and have a moment of sanity though. We came home and the kids had been fighting and vicious while we were gone. They had simply gotten too hot, I wish I would have closed the windows and turned on the air in retrospect. Heat just seems to make Dakota meaner than hell. It was 76 in the house when we arrived home, much too much for Dakota. Aaron talked to his dad for a while, his sister is back in the hospital and Papa is going to go to Colorado to be with her for three weeks or so. She will likely be in different facilities for the next three months or so. They are worried that her mental status will never recover from the damage done to her thyroid. It's a sad time for everyone.
So this morning I'm catching up and hoping that we get somewhere today with Hunter's psych (or rather the one taking over for her while she is on leave). I was going to try sending him to school again today, but I couldn't get him awake. He is just exhausted. I pray that we will get some answers this week and get out of this limbo. I need to know what is wrong and what to do about it. Aaron's appointment with the orthopedic surgeon is tomorrow, to find out if he will need surgery on his shoulder or what. He sees the retinal surgeon on Friday to see if his retinas can be surgically repaired. I'm on pins and needles for both. Please, God. Send some answers this week. Answers and solutions. Please.
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